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Please consider making a donation so that the IMF can continue its life-saving efforts on behalf of myeloma patients and families everywhere.  Thank You!

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A reminder to everyone -- if you buy from amazon, please use: http://amazon.myeloma.org instead of http://amazon.com. It takes you to the same place but the IMF gets >6% commission on purchases!

Donate Your Old Cell Phones and Become Part of the Cure!
Help the environment and the IMF by donating those old cell phones collecting dust in a closet. So how do you participate? Its easy! Drop off your old cell phones in the IMF collection boxes at either: The Leever Cancer Center, 1075 Chase Parkway, Waterbury, CT, or Prospect Town Hall, 36 Center Street, Prospect, CT. The IMF has partnered with "Donate A Phone", a project of ReCullular, Inc., and receives a donation for every cell phone you turn in! ReCellular, Inc., accepts all handheld portable wireless phones capable of operation on either cellular or PCS networks, whether they are working or not.

"One Person Can Make a Difference, Two Can Make a Miracle"
BE A PART OF THE MIRACLE

 

Support Group Founders/Leaders
Robin & Michael Tuohy
(203) 206-3536
tuohy@snet.net

Support Group Co-Leader
Brian Denyer
(860) 274-6270
bldens@yahoo.com

Our Monthly Meetings

The Connecticut Multiple Myeloma Fighters Information Group meets on most second Tuesdays of the month from 6:00 – 8:00 PM at the Harold Leever Regional Cancer Center, 1st floor conference room, 1075 Chase Parkway, Waterbury, CT 06708.  For more information, please contact Michael or Robin Tuohy at 203-206-3536 or by E-Mail at   This e-mail address is being protected from spambots. You need JavaScript enabled to view it

You are not alone. The Connecticut Multiple Myeloma Fighters Information Group is part of a network of worldwide myeloma specific support groups affiliated with the International Myeloma Foundation (www.myeloma.org).  Myeloma can very often be treated successfully, and many patients live long and productive lives after being diagnosed. We encourage you to learn as much as possible and to seek the best care possible.

At  our meetings, patients, caregivers and friends share their knowledge and experiences on treatments, coping with side effects, medical insurance, participation in clinical trials, new scientific and clinical research and provide mutual support and encouragement.

We also invite experts to join us and share their knowledge. Call, email or mail to get on our email/phone list so you can receive the meeting announcements. You can also view the details of our next support group meeting, get driving directions, etc. here on our web site.

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Meeting Cancellation Notice

In the event that we need to cancel a meeting due to inclement weather, we will send out an e-mail blast by 3:00 PM on the day of the meeting.

For members without e-mail, if you plan to attend a meeting and are not sure if it is still on, please call Robin Tuohy at 203-206-3536 after 3:00 PM on the day of the meeting for information.

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Attention myeloma caregivers: Click HERE for a link just for you!

For Directions to the Leever Cancer Center:  Driving Directions

Please join us for our next meeting:

 

March  11, 2014:  March is Myeloma Awareness Month and we have a very special Program Planned!

Special Guest Speaker:  Deborah Doss, RN, OCN, Dana Farber Cancer Institute, Boston MA
Topic:  Understanding Lab Values
RSVP:  Robin & Michael Tuohy 203-206-3536 or by e-mail at  This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Light Refreshments to be served
Thank You to our Friends at Millennium, the Takeda Oncology Company for sponsoring this Educational Program!

We will also discuss all our group member's efforts to increase awareness of myeloma.  To date, we have proclamations declaring March as Myeloma Awareness Month from the Towns of Naugatuck, Prospect, Watertown and Bridgeport.  We are actively pursuing a proclamation from the State of Connecticut.  If you would like to help, please contact Robin.

 

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Read more...

 

Our Mission

Our mission is to be an ongoing resource for information, support, shared experiences and hope for persons with multiple myeloma, their family and friends.

Our focus is to reach out to the myeloma community and empower them through education, provide support, and let them know they are not alone.   Education is key in the fight against myeloma.  Although we are not medical professionals, we strive to provide the most current information in myeloma treatment, clinical trials, side effects, pain management and quality of life issues by our affiliation with the International Myeloma Foundation.  Patients talk about things that doctors don't - like insurance, bills, assistance, work and how to go about life in general.  Our shared experiences help each other! 

 

Subscribe To Our eMail List

Click here to join our email mailing list on Yahoo! Groups. Through this list, you can receive monthly meeting reminders and other announcements.

 

Group Flyer

CLICK HERE TO PRINT AND DOWNLOAD the CT Multiple Myeloma Fighters Information Group Flyer Here 

 

Multiple Myeloma

Multiple myeloma is a cancer of the cells in the bone marrow that affects production of red cells, white cells and stem cells. More specifically, it is an uncontrolled growth of plasma cells which attack and destroy bone. It is the 2 nd largest of the blood cancers affecting an estimated 750,000 people worldwide; in industrialized countries it is growing in number and affecting increasingly younger people. Although there is no known cure, multiple myeloma is treatable and outcomes are constantly improving.

Join us as we our share experiences and information with each other.  Statistics show that people that attend support groups do better!

 

International Myeloma Foundation and Harold Leever Regional Cancer Center Acknowledgement

The Connecticut Multiple Myeloma Fighter's Information Group is proud to be affiliated with the International Myeloma Foundation and sponsored by the Harold Leever Regional Cancer Center in Waterbury.  We thank them wholeheartedly for their devotion to helping myeloma patients live better, stronger lives.

 

 

Latest Myeloma Research

The IMF produces webcasts from the major myeloma scientfic meetings.  Recent webcasts available:

American Society of Hematology (ASH) meetings - December 2011

International Myeloma Workshop meetings (Paris) - May 2011

American Society of Hematology (ASH) meetings - December 2010

American Society of Clinical Oncology (ASCO) meetings - June 2010

Webcasts from IMF Patient & Family Seminars

Webcasts from IMF Medical Meetings

 

MYELOMA TELECONFERENCES:

First Teleconference of 2012 - Replay available!

Best of ASH 2011 – What Patients Need to Know (clickable link)

Brian G.M. Durie, MD
Chair, International Myeloma Foundation
Cedars-Sinai Outpatient Cancer Center
Los Angeles, CA

ASH 2011 brought the greatest number of abstracts on multiple myeloma—712 to be exact—ever published in the meeting’s history. On this teleconference, Dr. Brian Durie covers the highlights of the meeting and explains how the research presented represents a year of significant steps forward in understanding, prognosticating, imaging, treating, and monitoring this disease.

 

 

 

Website Support/Host

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The Connecticut Multiple Myeloma Fighter's Information Group website is supported and hosted by the International Myeloma Foundation.