You are not alone. The Connecticut Multiple Myeloma Fighters Information Group is part of a network of worldwide myeloma specific support groups affiliated with the International Myeloma Foundation (www.myeloma.org). Myeloma can very often be treated successfully, and many patients live long and productive lives after being diagnosed. We encourage you to learn as much as possible and to seek the best care possible.
At our meetings, patients, caregivers and friends share their knowledge and experiences on treatments, coping with side effects, medical insurance, participation in clinical trials, new scientific and clinical research and provide mutual support and encouragement.
We also invite experts to join us and share their knowledge. Call, email or mail to get on our email/phone list so you can receive the meeting announcements. You can also view the details of our next support group meeting, get driving directions, etc. here on our web site.
Meeting Cancellation Notice
In the event that we need to cancel a meeting due to inclement weather, we will send out an e-mail blast by 3:00 PM on the day of the meeting.
For members without e-mail, if you plan to attend a meeting and are not sure if it is still on, please call Robin Tuohy at 203-206-3536 after 3:00 PM on the day of the meeting for information.
Attention myeloma caregivers: Click HERE for a link just for you!
For Directions to the Leever Cancer Center: Driving Directions
Please join us for our next meeting:
November 12, 2013: Special Guest Speakers:
- Elizabeth Zanin, Senior Hematology Oncology Consultant, Celgene Corporation
- Juliet Brines, CPhT, Senior Patient Support Specialist, Celgene Corporation
Will provide an update on reimbursement and what the Celgene Patient Support Program can offer to patients.
We will also have a round table discussion with group members sharing experiences and providing updates on important myeloma information.
Light refreshments will be generously provided for this meeting from Celgene Corporation.
Our mission is to be an ongoing resource for information, support, shared experiences and hope for persons with multiple myeloma, their family and friends.
Our focus is to reach out to the myeloma community and empower them through education, provide support, and let them know they are not alone. Education is key in the fight against myeloma. Although we are not medical professionals, we strive to provide the most current information in myeloma treatment, clinical trials, side effects, pain management and quality of life issues by our affiliation with the International Myeloma Foundation. Patients talk about things that doctors don't - like insurance, bills, assistance, work and how to go about life in general. Our shared experiences help each other!
Multiple myeloma is a cancer of the cells in the bone marrow that affects production of red cells, white cells and stem cells. More specifically, it is an uncontrolled growth of plasma cells which attack and destroy bone. It is the 2 nd largest of the blood cancers affecting an estimated 750,000 people worldwide; in industrialized countries it is growing in number and affecting increasingly younger people. Although there is no known cure, multiple myeloma is treatable and outcomes are constantly improving.
Join us as we our share experiences and information with each other. Statistics show that people that attend support groups do better!
The Connecticut Multiple Myeloma Fighter's Information Group is proud to be affiliated with the International Myeloma Foundation and sponsored by the Harold Leever Regional Cancer Center in Waterbury. We thank them wholeheartedly for their devotion to helping myeloma patients live better, stronger lives.
The IMF produces webcasts from the major myeloma scientfic meetings. Recent webcasts available:
First Teleconference of 2012 - Replay available!
Best of ASH 2011 – What Patients Need to Know (clickable link)
Chair, International Myeloma Foundation
Cedars-Sinai Outpatient Cancer Center
Los Angeles, CA
ASH 2011 brought the greatest number of abstracts on multiple myeloma—712 to be exact—ever published in the meeting’s history. On this teleconference, Dr. Brian Durie covers the highlights of the meeting and explains how the research presented represents a year of significant steps forward in understanding, prognosticating, imaging, treating, and monitoring this disease.