PLEASE NOTE THAT THIS WEBSITE IS CURRENTLY BEING UPDATED AND SOME LINKS MAY NOT WORK.  If you are looking for information from the International Myeloma Foundation, please go directly to that site at http://myeloma.org/. 

 We meet on most third Tuesdays of the month from 6:00 – 8:00 PM at the Harold Leever Regional Cancer Center, 1075 Chase Parkway, Waterbury, CT 06708. 

Patients, caregivers and friends share their knowledge and experiences on treatments, coping with side effects, medical insurance, participation in clinical trials, new scientific and clinical research and provide mutual support and encouragement.

We also invite experts to join us and share their knowledge. Call, email or mail to get on our email/phone list so you can receive the meeting announcements. You can also view the details of our next support group meeting, get driving directions, etc. here on our web site.

Driving Directions

SPECIAL EVENT INFO: 

Miles for Myeloma 5K Walk/Run Philadelphia

On Saturday, April 24, 2010 the Philadelphia Multiple Myeloma Networking Group, the Central New Jersey and Northern New Jersey Multiple Myeloma Support Groups are hosting a Miles for Myeloma 5K Regional Event. Proceeds from this event will benefit the research initiatives of the International Myeloma Foundation and the Leukemia & Lymphona Society's Multiple Myeloma Financial Assistance Program.

You can make a difference by joining our team as a runner or walker; or if you are not able to travel to Philadelphia you can support our team with a donation.

If you are interested in running/walking with "Team Tuohy" please contact Robin Tuohy at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

If you are interested in donating, we have set up a secure on-line donation page for our team.  Please use the links below or contact Robin for details.

 

  

Ø  Team Tuohy Fundraising Page-Click here to donate:

 

http://www.active.com/donate/philadelphiamyeloma/teamtuohy

 

Ø  Miles for Myeloma Event Website-Click here for details:

 

http://www.philadelphia.myeloma.org/Miles%20for%20Myeloma.html

 

Please join us for our next meeting :

August 17, 2010 -  Round Table Discussion with group members sharing their experiences.  We will also review and discuss the  IMF's Living Well with Multiple Myeloma Teleconference on Nutrition with Speaker, Loch S. Chandler, Naturopathic Physician, Acupuncturist from Providence Integrative Medicine Clinic in Portland, OR. 

Refreshments generously provided by  Kim Pierwola and Matt Nestor of Millennium Pharmaceuticals, Inc.

Our mission is to be an ongoing resource for information, support, shared experiences and hope for persons with multiple myeloma, their family and friends.

Our focus is to reach out to the myeloma community and empower them through education, provide support, and let them know they are not alone.   Education is key in the fight against myeloma.  Although we are not medical professionals, we strive to provide the most current information in myeloma treatment, clinical trials, side effects, pain management and quality of life issues by our affiliation with the International Myeloma Foundation.  Patients talk about things that doctors don't - like insurance, bills, assistance, work and how to go about life in general.  Our shared experiences help each other! 

Click here to join our email mailing list on Yahoo! Groups. Through this list, you can receive monthly meeting reminders and other announcements.

Download Our Group Flyer

 

Multiple myeloma is a cancer of the cells in the bone marrow that affects production of red cells, white cells and stem cells. More specifically, it is an uncontrolled growth of plasma cells which attack and destroy bone. It is the 2 nd largest of the blood cancers affecting an estimated 750,000 people worldwide; in industrialized countries it is growing in number and affecting increasingly younger people. Although there is no known cure, multiple myeloma is treatable and outcomes are constantly improving.

Join us as we our share experiences and information with each other.  Statistics show that people that attend support groups do better!

The Connecticut Multiple Myeloma Fighter's Information Group is proud to be affiliated with the International Myeloma Foundation and sponsored by the Harold Leever Regional Cancer Center in Waterbury.  We thank them wholeheartedly for their devotion to helping myeloma patients live better, stronger lives.

The IMF produces webcasts from the major myeloma scientfic meetings.  Recent webcasts available:       

2009 American Society of Hematology (ASH) meetings held in New Orleans in December, 2009

• http://ash.myeloma.org 

• 2009 ASCO meeting, held in Orlando in June, 2009
• XIIth International Myeloma Workshop held in Washington, DC in February, 2009
• 2008 ASH meeting, held in San Francisco in December, 2008

 

 

The Connecticut Multiple Myeloma Fighter's Information Group website is supported and hosted by the International Myeloma Foundation.